Table 2 Item-factor loadings of the GCOS-18 (T0 Utrecht)
Item description (subscales) | Factor 1 | Factor 2 | Factor 3 | Factor 4 | Factor 5 | Factor 6 |
|---|---|---|---|---|---|---|
2. I can explain what the condition means to people in my family who may need to know (KC) | 0.860 | −0.007 | −0.007 | −0.004 | 0.006 | −0.035 |
16. I can explain what the condition means to people in my family who may need to know (KC) | 0.716 | 0.044 | −0.003 | −0.023 | 0.024 | 0.013 |
3. I understand the impact of the condition on my child(ren)/any child I may have (KC) | 0.445 | −0.145 | 0.087 | −0.075 | 0.151 | 0.096 |
4. When I think about the condition in my family, I get upset (NE) | −0.010 | 0.923 | −0.009 | 0.033 | 0.039 | −0.060 |
11. Having this condition in my family makes me feel anxious (NE) | −0.033 | 0.631 | −0.007 | −0.088 | −0.044 | 0.018 |
21. I feel guilty because I (might have) passed this condition on to my children (NE) | 0.013 | 0.374 | 0.030 | −0.019 | 0.040 | 0.084 |
18. I don’t know who else in my family might be at risk for this condition (UH) | 0.003 | −0.016 | 0.874 | −0.043 | 0.038 | −0.077 |
12. I don’t know if this condition could affect my other relatives (brothers, sisters, aunts, uncles, cousins) (UH) | 0.021 | 0.027 | 0.593 | 0.047 | −0.022 | 0.138 |
8. I feel positive about the future (HO) | −0.105 | −0.003 | 0.035 | −0.850 | −0.028 | −0.011 |
20. I am able to make plans for the future (HO) | −0.010 | 0.038 | 0.021 | −0.575 | 0.075 | 0.030 |
9. I am able to cope with having this condition in my family (HO) | 0.165 | 0.124 | 0.055 | −0.559 | −0.074 | −0.047 |
19. I am hopeful that my children can look forward to a rewarding family life (HO) | 0.102 | −0.040 | −0.137 | −0.428 | 0.080 | 0.082 |
14. I understand the reasons why my doctor referred me to the clinical genetics service (KG) | −0.093 | 0.009 | −0.021 | −0.005 | 0.771 | 0.029 |
23. I understand what concerns brought me to the clinical genetics service (KG) | 0.049 | 0.059 | −0.006 | 0.016 | 0.656 | −0.013 |
1. I am clear in my own mind why I am attending the clinical genetics service (KG) | 0.139 | −0.040 | 0.065 | −0.050 | 0.537 | −0.032 |
10. I don’t know what could be gained from each of the options available for me (UT) | −0.015 | −0.040 | −0.004 | 0.004 | 0.040 | 0.634 |
17. I don’t know what I can do to change how this condition affects me/my children (UT) | −0.047 | 0.077 | 0.138 | −0.069 | −0.046 | 0.500 |
5. I don’t know where to go to get the medical help I/my family need(s) (UT) | 0.218 | 0.193 | −0.042 | −0.010 | 0.004 | 0.456 |
Eigenvalues | 4.24 | 2.38 | 1.66 | 1.20 | 1.08 | 0.96 |
% of variance | 23.61 | 13.22 | 9.22 | 6.69 | 5.97 | 5.32 |
Removed items | ||||||
6. I can see that good things have come from having this condition in my family | ||||||
7. I can control how this condition affects my family | ||||||
13. In relation to the condition in my family, nothing I decide will change the future for my children/any children I might have | ||||||
15. I know how to get the non-medical help I/my family need(s) (e.g. educational, financial, social support) | ||||||
22. I am powerless to do anything about this condition in my family | ||||||
24. I can make decision about the condition that may change my child(ren)’s future/the future of any child(ren) I may have | ||||||
